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>Bethany Becker

About Bethany Becker

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So far Bethany Becker has created 23 blog entries.
  • Sharon McCarry and children

Understanding Families’ Experiences: Why a Diagnosis Doesn’t Tell the Whole Story

In the early 2000s, Sharon McCarry was a globe-trotting Fortune-500 marketing director working ten to 12 hours a day. When her second child, Colm, started showing developmental delays during his first year, it was the beginning of “a life that was different, in every single aspect,” she says. McCarry, who lives in Montreal, left behind [...]

November 6th, 2018|News|
  • Sleep Live_ Better Nights Better Days

The Clocks are About to Change: Just the Right Time for a Sleep Show on Facebook Live

Shifting the clock back and forth in the fall and spring can cause havoc in households with young children. But sleep issues for up to 90% of of families raising children with neurodisabilities go far beyond disruption for a week or so. Perennial early waking, and trouble getting to, or staying asleep are all signs [...]

November 2nd, 2018|News|
  • WCPD18Logo_USADate_CMYK

Celebrating the Canadian Cerebral Palsy Registry and its Role on World CP Day

The Canadian CP Registry helped forge an alliance among cerebral palsy researchers across the country, and supports new insights and understandings of the most common motor disability in children. Established in 2003 in Quebec, Kids Brain Health, then known as NeuroDevNet, funded the expansion of the registry to its current coverage of Newfoundland, Nova Scotia, [...]

October 6th, 2018|News|
  • Dr. Veronica Schiariti receives a gift from children at the Step by Step Association for Help of Disabled Children in Zamosc, Poland

Transforming Treatment of Children with Cerebral Palsy by Focusing on their Abilities

Dr. Verónica Schiariti  is championing the use of an online tool to promote care for children and youth with cerebral palsy (CP) that emphasizes their functional capacities and abilities. Her efforts to transform the way CP is perceived and medically supported began as a Kids Brain Health supported postdoctoral fellow. As a trainee in developmental [...]

October 3rd, 2018|News|
  • Red shoes are a symbol of international FASD Awareness Day

Multiple Barriers Face Francophones with FASD in Ontario

Fetal Alcohol Spectrum Disorder (FASD) resources are a lifeline for families raising children with the neurodisability. But many Francophone families are cut off, simply because those resources can’t be found in French. The Fetal Alcohol Resource Program, a KBHN-funded organization, has been providing FASD resources, education for professionals, and service navigation in the Ottawa region [...]

September 7th, 2018|News|
  • Dr. Jan Willem Gorter (l) and Mona Sidler-Hosios, an occupational therapist at a town hall on transitions hosted by CBC's White Coat Black Art

Crisis in Care: The Discussion on Transitions for Youth with Disabilities is Far from Over

As young people with disabilities head towards adulthood, they find themselves cut off from familiar health services only to fall through the cracks of a fragmented adult care system. For many families raising children with disabilities, this transition is so abrupt and disorientating that it is described as “falling off the cliff”. While youth with disabilities [...]

August 22nd, 2018|News|
  • LukeandRae2

Sharing a Perspective Only a Mother Can Bring to the UN CRPD

Hi, my name is Rachel Martens, a 38 year-old mom of one from Calgary, Alberta, Canada with many hats to wear. I teach crochet, study as a part-time university student, and work as a research assistant for a KBHN-funded project called “Parents Partnering in Research,” (PPR) which is run through the CanChild Centre for Childhood [...]

August 16th, 2018|News|
  • Sam Pinnell and Son

Eye-tracking technology trial offers hope for earlier, cheaper diagnosis of FASD

"I had battled for years to try and find someone who could understand what was going wrong," Sam Pinnell told ABC News AM in Australia about her family's struggle to get a diagnosis for their youngest child. "The waiting list is so long, it's so hard to get your child diagnosed," she said. Diagnosing brain [...]

August 9th, 2018|News|
  • IMG_6732

Children with Disabilities Need Better Access to Sport

Following the June release of the 2018 ParticipACTION Report Card on Physical Activity for Children and Youth, Kids Brain Health Researchers began collaborating on an opinion piece focusing on their particular contribution to the report: the evidence around the benefits of physical activity and brain development kids with neurodisabilities. The text of an Op-Ed, published [...]

August 8th, 2018|News|
  • hero_PPR

Adding Experience to Expertise – How Parents can Impact the Relevance of Research

Parents of children with disabilities are stepping up to take a powerful role in shaping relevant, impactful research. Their greatest asset: their own personal, lived experiences of caring for their child. Parents Participating in Research (PPR), a Kids Brain Health Network-funded private Facebook group, is part of an emerging research model that brings parents and [...]

July 26th, 2018|News|