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Answering the call: The Chair in Autism Treatment and Care Research

Five years ago, the Canadian autism community told us of urgent need for impactful research that would change the lives of youth with ASD for the better - now. We celebrate Jonathan Weiss, the inaugural chair, explore his legacy, and look toward the future. “…Research is not really helping families on the ground who desperately [...]

February 15th, 2018|News|
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Parents Spend Out of Pocket for Access to Treatments while Evidence Base and Funding Lag

Since being diagnosed with cerebral palsy (CP) at 10 weeks of age, treatment has been a constant in Owen Crumpler’s life. His mother, Karena Crumpler, tried many early interventions including occupational therapy, speech therapy, and acupuncture. By the time Owen turned three, Karena and her husband felt he hadn’t made as much progress as they’d [...]

February 7th, 2018|News|
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Life with a Neurodisability Goes Beyond the Brain

Emily Travis was 16 when she began to faint regularly. Diagnosed with Fetal Alcohol Spectrum Disorder as a 12 lb., year-old infant, her health trajectory had been atypical from the start. But when Travis told her doctor she suspected the fainting was linked to her FASD, she was met with a dismissive response. “I’d say, [...]

February 7th, 2018|News|
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Supporting Mental Health in Children with Neurodisabilities and their Families

Mounting evidence is showing that oppositional, irritable or explosive behaviour in kids with neurodisabilties is rooted in the mental health of the child, and the child’s family. A recent study points to anxiety, depression and stress in cerebral palsy (CP), factors also seen in fetal alcohol spectrum disorder (FASD) as the underpinnings of meltdowns, outbursts [...]

February 7th, 2018|News|