BrothErs and Sisters involvement in health care TranSition for youth wIth Brain-based disabilitieS (BEST SIBS) Study

We are looking for siblings to take part in a research study to understand their experiences with their brother or sister with a brain-based disability who is preparing for health care transition in Ontario.

Are you a sibling of someone with a disability?

To participate, you need to be:

  1. between 14 to 25 years old;
  2. able to speak English;
  3. have a brother or sister in high school with a diagnosis of:
  • autism spectrum disorder
  • cerebral palsy
  • epilepsy
  • fetal alcohol spectrum disorder or
  • spina bifida

You will be asked to:

  • participate in an interview
  • bring photographs that describe your sibling relationship and
  • share your story about your sibling relationship related to preparing for health care transition.

The interview will be about 1 hour long.

You will have the option to have the interview: a) by telephone; or b) online through the Zoom program.

We hope to raise awareness about siblings’ experiences and their roles during health care transition. These stories can help us to create resources to support siblings, and shared with families and health care providers.

For more information or to volunteer for this study, please contact:
Linda Nguyen, PhD Candidate
School of Rehabilitation Science, McMaster University

This study has been reviewed by, and received ethics clearance by the Hamilton Integrated Research Ethics Board (Project Number 7932)