Challenge While every neurodevelopmental disability (NDD) has its unique challenges, there are consistencies among them, one of which is the difficulties parents face navigating the system. Project Summary The Integrated Navigational Support Program is working to make it easier for families to access supports and services. The project currently has three sites—Vancouver, Edmonton, and [...]
Service utilization, costs and impact of interventions for children with neurodevelopmental disabilities
Nicolas Turgeon-Morin2023-05-04T07:35:42-08:00Challenge More than 770,000 Canadians are currently living with ASD, FASD or CP — the most common neurodevelopmental disabilities. Treatments for these conditions have been focused on behavioural and symptom management because there now are no cures or effective preventions. For health care decision-makers to be able to make informed choices, there needs to be [...]
Expansion of the Canadian Cerebral Palsy Registry
Nicolas Turgeon-Morin2023-05-04T07:37:52-08:00Challenge The Canadian Cerebral Palsy Registry initially launched in 2003 as a platform to store data from people diagnosed with cerebral palsy (CP). It has since expanded to include more than 2,250 participants with the disorder and has resulted in more than 35 academic publications. The next phase of the project is looking to expand [...]
Health Economic Assessment of KBHN Interventions
Nicolas Turgeon-Morin2023-05-04T07:38:18-08:00Challenge Disability is associated with increased health and social service costs that vary significantly with the severity of the disability. In Canada, estimating the costs associated with a neurodevelopmental disorder (NDD) is challenging because the diagnosis process is lengthy. There are many costs to consider throughout a person’s lifespan, such as medical care, educational expenses [...]
Unmet Needs of Children with Neurodisabilities
Nicolas Turgeon-Morin2023-05-04T07:38:42-08:00Challenge In Canada, there have been poor outcomes for children with a neurodevelopmental disorder (NDD), with educational achievement and employment outcomes being the lowest of all existing disability groups. This outcome is a result of the unmet needs by services for children with a neurodevelopmental disorder and their families. Describing these needs for children with [...]
Integrated Navigational Support for Families of Children with Neurodevelopmental Disabilities
Nicolas Turgeon-Morin2023-05-04T08:21:04-08:00A Pilot in Alberta, British Columbia and the Yukon Challenge Children with neurodevelopmental disabilities (NDDs) often navigate a confusing patchwork of uncoordinated services. These services span several different sectors, organizations and layers of government. Research shows that families frequently struggle to determine what supports are available, appropriate and accessible —especially at crucial life junctures such [...]
