The recent identification of new genetic variants associated with autism brings to the forefront important considerations when using genetics as a tool for detection of this complex disorder. “Whole genome sequencing resource identifies 18 new candidate genes for autism spectrum disorder”—which was funded by Kids Brain Health Network and published in Nature Neuroscience—is the largest [...]
Dr. Brian has been a KBHN researcher since 2015. We reached out to ask her some questions about her work to support children with neurodevelopmental disabilities and their families. Can you describe your educational path and what inspired you to get into the work you do now? I have wanted to be a psychologist since [...]
FER 2018 parent graduate Kirsti Mardell with her family. Kirsti Mardell never thought she would have a role to play in health research. But her whole perspective changed when her son was diagnosed with autism in 2012. Her journey began as a participant in an early detection and sibling research study. Mardell subsequently [...]
In an increasingly globalized world, unique approaches to early intervention for autism are becoming possible through enhanced collaboration across national borders. In honour of World Autism Awareness Day 2019, Kids Brain Health is celebrating our Social ABCs research project, a parent-delivered program guided by a trained parent coach. Targeting children three and under showing early [...]
In the early 2000s, Sharon McCarry was a globe-trotting Fortune-500 marketing director working ten to 12 hours a day. When her second child, Colm, started showing developmental delays during his first year, it was the beginning of “a life that was different, in every single aspect,” she says. McCarry, who lives in Montreal, left behind [...]
Shifting the clock back and forth in the fall and spring can cause havoc in households with young children. But sleep issues for up to 90% of of families raising children with neurodisabilities go far beyond disruption for a week or so. Perennial early waking, and trouble getting to, or staying asleep are all signs [...]
Parents of children with disabilities are stepping up to take a powerful role in shaping relevant, impactful research. Their greatest asset: their own personal, lived experiences of caring for their child. Parents Participating in Research (PPR), a Kids Brain Health Network-funded private Facebook group, is part of an emerging research model that brings parents and [...]
Kids Brain Health Network supports findings in the 2018 ParticipACTION Report Card on Physical Activity for Children and Youth. Released today, the Report Card gave Canadian kids a score of D+ for Overall Physical Activity. This grade is particularly alarming considering that this year’s Report Card also highlights important connections between physical activity and kids’ [...]
Rob More remembers sitting in on a meeting where two parents were telling the school principal that their children with Fetal Alcohol Spectrum Disorder (FASD) needed more support. The school psychologist chimed in to inform them that FASD was not a recognized disability. For More, a special needs educator and parent advocate, the story encapsulates [...]
Between 40 to 70 percent of children with neurodisabilities struggle with emotional and behavioural problems during their childhood. Research shows that family mental health is highly interconnected. “The family is a system in which each member affects the others - for good and for bad,” says Dr. Jean-Paul Collet, a Kids Brain Health investigator [...]
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