The three of us met online while taking the Family Engagement in Research Certificate course. We each took the course for various personal reasons because of our own families and experience with research. Genevieve joined the course because she wanted to reduce the isolation that parents of children with a complex disorder often experience. [...]
Nicole Morris was a first-time parent, but she knew something wasn’t right. Her one-year-old twin daughters were missing a lot of milestones. The oldest in particular was struggling—she still couldn’t roll over or hold her head up. Born at 26 weeks gestation, most people chalked it up to the girls being premature, but Morris [...]
FER 2018 parent graduate Kirsti Mardell with her family. Kirsti Mardell never thought she would have a role to play in health research. But her whole perspective changed when her son was diagnosed with autism in 2012. Her journey began as a participant in an early detection and sibling research study. Mardell subsequently [...]
In the early 2000s, Sharon McCarry was a globe-trotting Fortune-500 marketing director working ten to 12 hours a day. When her second child, Colm, started showing developmental delays during his first year, it was the beginning of “a life that was different, in every single aspect,” she says. McCarry, who lives in Montreal, left behind [...]
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