Individuals living with neurodevelopmental disabilities and their families have faced additional challenges over the last year, ones that might extend beyond the pandemic. In response to this, KBHN Chief Scientific Officer Dr. James Reynolds and his PhD student Maude Champagne undertook a project to better understand the social support needs of families raising children [...]
The three of us met online while taking the Family Engagement in Research Certificate course. We each took the course for various personal reasons because of our own families and experience with research. Genevieve joined the course because she wanted to reduce the isolation that parents of children with a complex disorder often experience. [...]
CALL FOR ABSTRACTS 4th Annual FASD Eastern Ontario Symposium December 1, 2020—Brookstreet Hotel, Ottawa, Ontario (Canada) Thank you to everyone who has submitted an abstract for our 4th Annual FASD Symposium. For those who are still considering a submission, please note that we have extended the submission deadline to Aug. 7, 2020 as a number [...]
CanFASD is launching a new prevention campaign aiming at reducing risk for couples that are having unprotected sex and using alcohol; couples that are trying to get pregnant and using alcohol; and couples that are pregnant and using alcohol. The initiative called Think FASD (#thinkFASD) can be seen at https://www.thinkfasd.ca/. "FASD is a lifelong disability [...]
FASD Day in the Ontario Legislature By: Karen Moore When I first heard about the plan to take 15 families, which included children and youth with FASD, I thought, "Are you kidding me? We are going to travel form Lanark county to Toronto, stay in a hotel overnight and then spend the day at [...]
The 2nd Annual FASD Day February 24, 2020, marked the 2nd annual FASD Advocacy Day. Twelve families travelled to Ontario to share their stories on Fetal Alcohol Spectrum Disorder (FASD) and advocate for legislative changes that would allow for more meaningful public consultation and the development of a provincial strategy. KBHN Cheif Scientific Officer, Dr. [...]
September 9, 2019 Receiving a fetal alcohol spectrum disorder (FASD) diagnosis isn’t easy. First, it requires confirmation of prenatal exposure to alcohol. If—and only if—this is confirmed, a lengthy referral process ensues, followed by a diagnostic assessment which usually doesn’t take place until a child is school-aged, and often even later. But research has shown [...]
A decade ago, Chief Scientific Officer of Kids Brain Health Network (KBHN) Dr. James Reynolds remembers considering how groundbreaking it would be to have a Canadian Fetal Alcohol Spectrum Disorder (FASD) database - one that could capture the many unanswered questions surrounding the disability. Dr. Sterling Clarren—former Scientific Director of the Canada Fetal Alcohol [...]
Dr. Macoun has been a KBHN researcher since 2015. We reached out to ask her some questions about her work to support children with neurodevelopmental disabilities and their families. Can you describe your educational path and what inspired you to get into the work you do now? My path to academia is a somewhat unusual one. [...]
Our newly appointed Chief Scientific Officer, Dr. James Reynolds, will speak with the Hastings and Prince Edward County FASD Care Giver Support Group on April 18 to share his research on the effects of prenatal alcohol exposure on the developing brain. During the workshop, he will also explore the resulting cognitive, behavioural and socio-emotional deficits that may occur [...]
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