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This video encourages individuals to consider participating in family engagement in research by highlighting roles, responsibilities, benefits for individuals, as well as short-term and long-term advantages for all involved. Viewers might also use this tool to start conversations on topics such as compensation and more. This video is available in both French and English. [...]

The enclosed essay entitled "Research Engagement Facilitator: Bridging the gap between researchers and people with lived experience" introduces the concept of a Research Engagement Facilitator (REF) which is a unique role that serves both researchers and families to actively aid in ensuring impactful research. Included within is a job posting that describes the key attributes [...]

This infographic is designed to explain to families new to research, what partnership or engagement in research is and why it can be beneficial to get involved. The first page can be printed as a standalone document to be presented in hospital waiting rooms, schools, academic institutions etc. the QR present on the first page [...]

The first challenge encountered by many researchers who want to conduct research in partnership with family members is finding family members to work with. This infographic provides researchers concrete tips and strategies on how to find family partners for research. The infographic reviews WHEN to look, WHERE to look, and HOW to look for family [...]

Deciding to partner in research can be challenging for both lived experience experts and researchers. Taking time to consider some key factors can help individuals make an informed decision about whether partnering in a project is right for them. The Decision Guide For Partnership Research is a collaborative tool meant to be used by researchers [...]

Dissemination of a research project extends beyond just study publication. Dissemination is found throughout the research project - from proposal development to results analysis. This dissemination guide has been developed based on the belief that strategic consideration of how important research insights from both patient/family partners and research can be combined to ensure maximum impact. [...]

This tool is a youth's guide to becoming a patient partner in research. The tool was specifically tailored to focus on transition-aged youth because they are in a unique stage of life. At this time, they may be becoming more independent in navigating their condition(s) and making decisions about getting involved in research. Authors: Claudia Tersigni, Tieghan Killackey, [...]

Lynda Moore and Robyn Evans Cunningham are two parents of children with cerebral palsy (CP) and Fenna Walhain and Stacey Miller are CP researchers. Together, they share their thoughts on what you need to know when getting started with family engagement in research (FER). While they live and work in different parts of the [...]

Communication is the foundation for Family Engaged Research. This video explains how a tool called the Involvement Matrix can support and encourage researchers and family partners to communicate their expectations and preferred roles for a research project. Authors: Lisa Kakonge and Carrie Millar