This roadmap provides high-level guidance to guide institutions to develop or expand their family engagement in research (FER) programs and activities. The five key steps outlined in the roadmap are prepare, plan, implement, sustain, and expand; the accompanying table provides a more detailed explanation of what’s involved at each step. Establishing a partnership between researchers, family members, patients, and the institution’s executives is paramount to the success of FER programs.
Authors: Jean-Christophe Bélisle-Pipon, Kimberly Courtney, Shelley Frappier, Alison Howie
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