Individuals living with neurodevelopmental disabilities and their families have faced additional challenges over the last year, ones that might extend beyond the pandemic. In response to this, KBHN Chief Scientific Officer Dr. James Reynolds and his PhD student Maude Champagne undertook a project to better understand the social support needs of families raising children [...]
The Kids Brain Health Network (KBHN) has an exciting new update! This year, we’re welcoming three new members to the KBHN Research Management Committee (RMC). The RMC is an essential part of KBHN’s governance and research structure, serving as a Standing Advisory Committee to the Board of Directors. The RMC is primarily responsible for [...]
Ottawa, ON – It has become apparent that spousal abuse/violence in the home has increased during the current pandemic. What is not generally known is that there has also been an increased incidence of challenging behaviours, including aggression towards other family members in families that include those with neurodevelopmental disabilities (NDD). [...]
Kids Brain Health Network Strategic Investment Fund 2021 Request for Applications
Throughout the pandemic, families and children living with disabilities have faced extra challenges. Many have lost essential services such as respite, and others have had difficulty accessing COVID-related information, all of which have caused great distress and potentially caused or exacerbated mental health challenges in this population. A project led by Kids Brain Health [...]
Network-Analysis Project Aims to Accelerate Knowledge Translation On March 3, Dr. Stephanie Glegg (a KBHN researcher ) with Dr. Kristy Wittmeir were awarded an Institute Priority Announcement bridge grant from the Canadian Institutes of Health Research. Their project will map and characterize the current state of the connections within child development and rehabilitation (CD&R). [...]
Congratulations to Dr. Stelios Georgiades for his new role as inaugural Chair of the McMaster Children’s Hospital Chair in Autism and Neurodevelopment. Georgiades, is involved in several KBHN research projects and also who serves on the KBHN Research Training Committee. His new position represents a partnership between McMaster University and Hamilton Health Sciences with [...]
The Kids Brain Health Network and the Canadian Autism Spectrum Disorder Alliance (CASDA) have partnered to bring the 2021 KBHN-CASDA Policy Development Practicum. This successful partnership was created to support the federal government’s commitment to creating a National Autism Strategy, providing an opportunity for graduate students, postdoctoral fellows, and research associates to contribute to [...]
Ten years ago, the Canadian Institutes of Health Research (CIHR) developed a Strategy for Patient-Oriented Research (SPOR). One of the foundations of SPOR is patient engagement, which is defined as “meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation.”[1] This blog will explore Family Engagement in Research (FER). More specifically, [...]
Parents who’ve recently learned that their young child has a disability often don’t feel prepared to meet the challenges ahead. This is part of why investigators at McMaster University’s CanChild Centre for Childhood Disability Research have been developing a series of online workshops called ENVISAGE: ENabling VISions And Growing Expectations. Co-designed by researchers and [...]
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