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Using Your Lived Experience to Influence Health Research

This post is shared from THE CAREGIVERS' LIVING ROOM - A Blog by Donna Thomson      I am a parent partner in disability health research. Caregiver partners in research use their lived experience to influence WHAT is researched and HOW it's researched. We have the opportunity to ease the path of care for other families and [...]

2020-01-09T11:43:09-08:00January 9th, 2020|News|

Appointment of KBHN New Deputy Chief Scientific Officer, Dr. Jennifer Zwicker

Dr. Jennifer Zwicker has been appointed by KBHN Board as the new Deputy Chief Scientific Officer (DCSO) of the Kids Brain Health Network. Dr. Zwicker is Director of Health Policy at the School of Public Policy and an Assistant Professor in the Faculty of Kinesiology at the University of Calgary. Her research utilizes economic evaluation [...]

2019-12-19T11:44:46-08:00December 19th, 2019|News|

Better Nights, Better Days Training Program Webinar Series

Better Nights, Better Days (BNBD) is a program intended to address sleep issues across a range of neurodevelopmental disabilities, including autism, FASD, cerebral palsy and ADHD. Since last year, it has been collaborating with Kids Brain Health Network to offer monthly webinars to interested trainees, scientists and clinicians. This academic year, Better Nights, Better Days [...]

2019-11-29T06:30:08-08:00November 26th, 2019|News|

The Canadian Paediatric Society releases recommendations for assessment of youth with autism spectrum disorder

The Canadian Paediatric Society has recently released three position statements for the assessment of children and youth with autism spectrum disorder. Dr. Lonnie Zwaigenbaum, the Director of the Autism Research Centre based at the Glenrose Rehabilitation Hospital, is one of the lead investigators on a KBHN-funded study of infants at increased risk of ASD. His [...]

2023-05-08T10:53:58-08:00October 25th, 2019|News|

Dr. Shelly Weiss Appointed North American Representative of Governing Council for World Sleep Society

Dr. Shelly Weiss, Neurologist at the Hospital for Sick Children (SickKids) and a Professor in the Faculty of Medicine, University of Toronto, was recently elected to the Governing Council of the World Sleep Society. Weiss has been involved in evaluation of children with sleep disorders for more than 20 years. As one of the researchers [...]

2020-03-27T09:43:18-08:00October 23rd, 2019|News|

KBHN supports early assessment tool to identify children at-risk for FASD

September 9, 2019 Receiving a fetal alcohol spectrum disorder (FASD) diagnosis isn’t easy. First, it requires confirmation of prenatal exposure to alcohol. If—and only if—this is confirmed, a lengthy referral process ensues, followed by a diagnostic assessment which usually doesn’t take place until a child is school-aged, and often even later.  But research has shown [...]

2019-09-09T09:32:03-08:00September 9th, 2019|News|

Bridging the Gap: the Jooay App is Transforming Access to Leisure for Children with Disabilities

September 6, 2019 Community leisure activities are an important source of physical activity and healthy development for youth. For children with disabilities, however, it can be challenging to find local activities that are accessible and inclusive to their needs. Developed at McGill University and funded in part by Kids Brain Health, the Jooay App is [...]

2019-12-04T13:26:36-08:00August 30th, 2019|News|

From Research to Impact: How Efficient Are Our Health Interventions?

The challenges associated with neurodevelopmental disabilities can be complex, and families often access a wide range of specialized clinical, educational, and community-based interventions to help their children. But the reality is money is limited and competition to fund these interventions and services can be stiff. Being able to prove the efficiency and effectiveness of interventions [...]

2023-05-08T10:56:20-08:00August 29th, 2019|News|
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