Uncategorized

This infographic highlights the need for family engagement in child health research. The infographic provides a definition of family engagement in research and then outlines the reasons for researchers and benefits for families. Authors: Crystal Shannon and Kirsti Mardell Please click the following links to download the documents:​ Family Engagement in Child Health Research Needed

This resource provides information for families and researchers on how to have solution-focused conversations in research partnerships. This tool is intended to provide strength-based, solution-focused prompts to frame conversations and to be used as a guide for families and researchers throughout the research process. Authors: Samantha Micsinszki and Alifa Khan Please click the following links to [...]

This infographic provides tips and strategies on how to develop partnerships and enhance engagement throughout the research process. The infographic is divided in half. On one side of the page the information is directed at researchers who would like to involve family partners in their clinical and/or biomedical research project. The other side is directed [...]

This infographic provides information to family members who are interested in getting involved in child health research or who are already involved and might have some more questions about the process. The infographic addresses 5 key questions: i) How can I be involved?; ii) What are the benefits of partnering with researchers?; iii) But what [...]

This infographic is specifically tailored to graduate students on some of the ‘do’s’ and ‘don’ts’ of patient engagement in research. This tool focuses on seven main domains: i) learning the ropes & finding partners; ii) building relationships; iii) determining roles; iv) prioritizing questions; v) time management; vi) expenses & compensation; and vii) education. Authors: Yvonne Brandelli [...]

This tool provides a comprehensive conversation guide, as well as tips for communication and relationship-building between researchers and patient/family partners. This infographic and conversation guide provides advice for various stages of the conversation, sample phrases, and tips on self-awareness, trust, respect, mutual understanding, and reciprocity. Authors: Lin Li and Carolyne Osterhues Please click the following links [...]

This tool provides guiding principles for youth and researchers that are working together on projects. It emphasizes “Your Voice Matters,” and examines five key concepts to help bridge the gaps in building connections between youth and researchers. Authors: Tracey Smythe and Shaylene Pind Please click the following links to download the documents:​ Your VOICE Matters

This resources provides an overview of research and the importance of family engagement. It includes ideas on how families can think about research and the steps required in the development of research projects. Feel free to download, share and print this double sided tri-fold brochure. Authors: Liat Gafni Lachter & Hannah McGee Please click the [...]

This infographic provides a roadmap example for families wishing to partner in research projects. It provides ideas for reflections, professional relationship building, and ways to become more engaged in research settings. Authors: Amanda Carrington & Vanessa Tomas Please click the following links to download the documents:​ A Road Map for Family Partners to Get Started [...]

This infographic provides 7 ethics tips for families planning to partner in research projects. These tips can help families ask important questions during partnership building and become more confident with engaging in research. Authors: Amanda Carrington & Vanessa Tomas Please click the following links to download the documents:​ Know Your Rights [...]