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The Youth Engagement in Research Instagram account was created by Amanda Doherty-Kirby, James Reeder, and Nicole Proudfoot to increase awareness about how youth can engage in health-related research beyond being a participant. The @youth_in_research page shares knowledge about how youth engagement works, spotlights youth (both those with lived experience and researchers), and shares opportunities for youth to partner in research. If [...]

The purpose of the @FER_InAction Twitter account is to highlight effective strategies, tools and experiences in family engagement in research targeted at both researchers and families. This page is designed intentionally as a Knowledge Translation tool and was created by Angelica Blais, Maeghan James, Elise Bloch and Clara Pina. Please feel free to follow the [...]

This glossary is intended to support communication between researchers and family members that are partnering in research. It's normal for some family members to feel a bit lost in the jargon and slang researchers use regularly in their line of work. This document is not meant to be exhaustive or authoritative and some terms may [...]

This ‘Guidelines for Researchers’ KT project was created to provide researchers with a brief introduction to family engagement in research. It’s a simple “How To” guide, ripe with resources, for researchers to start their first project with family/patient partners. Authors: Elizabeth (Liz) Boyer, Pamela Libralesso, and Sara Pot Please click the following links to download the [...]

The "Family Engagement in Research: A Conversation Guide" is a collaborative tool meant for use by both researchers and family partners. This guide will walk researchers and partnered families through the necessary steps to designing and carrying out a research project, encouraging shared discussions around project hopes, goals, roles, and expectations. Included in the guide [...]

These tools can be used to strengthen relationships within teams and enhance engagement through promoting self-reflection across members of a research team. There are three components to this tool: (1) a personal goal setting document, (2) a personal check-in document, and (3) a facilitation guide designed to promote discussions across group members about each member’s [...]

KBHN Virtual Conference 2021 GUIDELINES FOR SUBMISSION Abstracts must not exceed 300 words. Abstracts must be submitted in clear English in the appropriate fields below. Basic/Clinical Research Study abstracts may be structured to include an introduction/background, objective/hypothesis, methods, findings/results, and conclusions/implications for practice. Knowledge Mobilization/Community Education & Program Promotion abstracts may be structured [...]

This infographic provides a checklist for patient partners in research and highlights key questions parents should ask at each stage of the research project. The second page explores patient partners’ roles in each stage of the research process. Authors: Heather Shearer and Kristina McGuire Please click the following links to download the documents:​ Checklist for Patient [...]

This infographic provides a visual pathway for researchers to showcase the process of engaging patients, families, caregivers and/or community members (PFCC) as partners throughout each stage of the research process. The authors also developed a complementary checklist and planning guide to be used in collaboration with this infographic to optimize knowledge uptake and understanding of [...]

This infographic provides a quick reference guide to authentic partnership in research, highlighting principles, values, and best practice. The authors developed the acronym ‘IMPACT’ to summarize principles and values including Inclusivity, Mutual respect, Partnership, Accountability, Co-learning, and Transparency. Authors: Francine Buchanan and Ayesha Siddiqua Please click the following links to download the documents:​ A quick Reference [...]