The Challenge

10-17% of kids aged 1-14 in Canada have a neurodevelopmental disability (NDD) but face barriers to early identification, intervention and support.

struggling children

Currently, +90% of children with NDDs do not grow out of challenges that affect quality of life and activities of daily living.

care providers

Wait times for access to NDD diagnosis and treatment can be as long as 2-3 years during critical periods of child development.

A stressed families

Parents of Children with NDDs have significantly higher stress levels, employment challenges, feelings of isolation, and mental health issues.

Canada

Only one Canadian province has studied the policy and organizational obstacles to coordinated care for children with disabilities.

Our Vision

All children living with neurodevelopmental disabilities enjoy a good quality of life, inclusion in all aspects of society and reach their full potential.

Our Mission

Through catalyzing collective action across sectors, KBHN ensures optimal care and better outcomes for children with neurodevelopmental disabilities and their families.

Kids Brain Health Network is focused on Proven Solutions in Three Key Areas

Early identification

The sooner a neurodevelopmental disability is identified, the sooner treatment can begin. Too often, children with neurodevelopmental disabilities are not identified during the critical early periods of brain development when interventions have the greatest impact on the trajectory of their disabilities. Research funded by Kids Brain Health Network is breaking down barriers to access and is pushing diagnostic capacity into infancy, so children with neurodevelopmental disabilities can be identified sooner.

Early intervention and effective treatment

Early interventions and treatment for neurodevelopmental disabilities in children opens the opportunity for very real progress, which means they must be accessible in all parts of the country and to diverse cultures. Kids Brain Health Network is working at the cutting edge of treatment, to ensure all children and families have access to effective interventions and treatments early on.

Family support

Families raising children with neurodevelopmental disabilities face challenges that affect most aspects of their lives. Research funded by Kids Brain Health Network is identifying the most effective strategies to support parents and caregivers to reduce family stress, improve communication, and access resources that help their children realize their full potential.

Research Activities

Our research outcomes empower our partners to mobilize early identification, effective intervention and family support programs that improve quality of life and outcomes for children with NDDs.

An investigator is looking through a microscope

Over 90 disciplinary principal and co-investigators, 150-200 trainees (average per year)

research institutions

24 academic research institutions across Canada

partners

500+ implementation partners, frontline staff and practitioners.

A father is having a playful engagement with his daughter

Authentic engagement of families.

OUR IMPACT

Two young children are playfully interacting

More children with NDDs are identified in early life.

An investigator is taking notes

Adoption of more research-tested interventions for children and families.

Two parents are holding their baby

More families receive the training and support they need.

A mother is lovingly engaging with her boy

Children are empowered to reach their full potential.

KBHN funded under Networks of Centres of Excellence (NCE)

The Government of Canada through its Networks of Centres of Excellence (NCE) funds a suite of programs, research initiatives, and partnerships between universities, industry, government and not-for-profit organizations which mobilize Canada’s best research, development and entrepreneurial talent, and focus it on specific issues and strategic areas.

Learn more about NCE and its programs here.

NCE Logo with Canada's Flag on the Left

Host Institution

Kids Brain Health Network’s administrative office is located at the Burnaby Campus of Simon Fraser University (SFU).

As KBHN’s host institution, SFU makes a natural home for the Network with Simon Fraser University’s strategic focus areas including improving health across the human lifespan, emphasis on community engagement and the translation of knowledge for the greatest societal impact.

Simon Fraser University

READ OUR ORGANIZATION BROCHURE!

No other organization in Canada does what KBHN does.

We identify and support the most promising new research in neurodevelopmental disabilities, evaluate new and effective treatments, and explore better ways to support children and their families.

Read more about how we’re helping all kids live their best lives.

KBHN - Organization Brochure - 2023
We Move Innovation into Practice