Kristina Mangonon McGuire, Instructor, Family Engagement in Research program
Kristina is a research and patient engagement specialist dedicated to strengthening partnerships between patient communities and the research world. With a background in nursing and lived experience as a parent of children with complex medical needs, she ensures patient voices are central to healthcare research and improvement.
For over a decade, Kristina has served as a patient advisor with local, provincial, and national health agencies, shaping policies and research initiatives. Since 2021, she has been an instructor with the Kids Brain Health Network’s Family Engagement in Research program, equipping families and researchers with tools for effective collaboration. She excels in facilitating partnerships, advocating for patient-centered research, and ensuring families are active contributors rather than just participants.
Kristina is committed to integrating lived experience into research, co-developing patient engagement strategies, advising on study design, and making research more accessible. Her work emphasizes shared decision-making, ethical engagement, and long-term partnerships. By bridging the gap between scientific discovery and real-world application, she helps create research that is not only meaningful but also drives better outcomes for patients and families.
