KT

Challenge Whereas children and families affected by neurodevelopmental disorders have needs, scientists have research questions. Kids Brain Health Network’s Knowledge-Translation (KT) Core builds bridges between the two so that research can make a real difference for those it intends to serve. Project Summary and Results In 2016, the KT core conducted 32 one-on-one interviews with [...]

Challenge Researchers from Kids Brain Health Network (KBHN)’s neuroethics core analyzed content from major English-language Canadian newspapers. They identified ways that the news is contributing to the stigma attached to fetal alcohol syndrome disorder (FASD). Articles often exaggerated the rate of FASD in Indigenous communities. These articles also implied that it is a hopeless or [...]

Challenge While cerebral palsy (CP) researchers continue to make meaningful scientific discoveries, there have been barriers to communicating those findings to other scientists, clinicians, families and the public. Project Summary The Cerebral Palsy Demonstration Project has been helping to address this issue with the Knowledge Translation and Exchange (KT) Strategy. The KT team has worked [...]

Challenge It is no secret that there is often a gap between published evidence and the support that children with neurodevelopmental disabilities receive. For years, many researchers have struggled with how to translate knowledge into impact and have often carried out research without keeping this in mind. What resulted was a multitude of research and [...]

Challenge A person’s genome could contain useful information about their risk of autism spectrum disorder, but how should genome sequencing be used in diagnosis, genetic counselling and patient management? What treatments and follow-ups should come after what kinds of test results? And how should these very complex and sometimes ambiguous results be conveyed? How can [...]

Challenge While Canadian scientists are leaders in Cerebral Palsy research, effective communication and geography are barriers to creating connections that could lead to meaningful scientific discoveries. Additionally, knowledge of the root causes of CP is at an early stage. The lack of uptake of new evidence-based medical treatments highlights the need for better knowledge dissemination [...]