Dr. Jan Willem Gorter

Challenge Many families of children with neurodevelopmental disabilities (NDDs) don’t want to be just passive research subjects; instead, they want to be active research partners. A project tends to have greater relevance when it arises directly from the needs and priorities of families rather than solely the interests of researchers or their funders. Despite this, [...]

Challenge By involving family members of children with neurodevelopmental disabilities as partners in the research process, we can better address the needs of families. More importantly, research results will have a more significant impact on the target audience.  Many families are eager to get involved in neurodevelopmental research, but don't necessarily have the experience or [...]

Challenge For families of children with neurodevelopmental disabilities (NDD), significant barriers exist in accessing trusted sources of new and existing knowledge, and in the lack of opportunities available to share their experiences. By participating in research, families and youth can help address these issues, impact change and be empowered. Jan Willem Gorter and Dayle McCauley [...]