Challenge The Canadian Cerebral Palsy Registry initially launched in 2003 as a platform to store data from people diagnosed with cerebral palsy (CP). It has since expanded to include more than 2,250 participants with the disorder and has resulted in more than 35 academic publications. The next phase of the project is looking to expand [...]
Canadian Cerebral Palsy (CP) Registry
Nicolas Turgeon-Morin2023-05-04T07:53:38-08:00Challenge There has historically been a lack of population-based information on how cerebral palsy presents in children, including possible risk factors, antecedent causes, functional severity, and co-morbidities of the condition. To better understand the condition, the Canadian Cerebral Palsy Registry was created in Cycle I. Project Summary The Registry is a confidential, nation-wide collection of [...]
The Canadian Cerebral Palsy Registry
Nicolas Turgeon-Morin2023-10-19T10:47:26-08:00Challenge While cerebral palsy is the most common physical impairment in pediatrics, there is a lack of data on how the disease presents in children at the population level. Do regional differences exist across the frequency and spectrum of cerebral palsy within Canada? How does the Canadian experience compare internationally ? What can a population [...]
Cerebral Palsy Genetics
Nicolas Turgeon-Morin2023-10-19T10:58:04-08:00Challenge While the past several years have seen a growing awareness of the role of genetic risk factors in cerebral palsy, studies regarding the role gene variants play, their severity, and resulting co-morbidities of cerebral palsy have only just begun. Many new techniques in molecular genetics have emerged over the past few years, allowing for [...]