Challenge The Canadian Cerebral Palsy Registry initially launched in 2003 as a platform to store data from people diagnosed with cerebral palsy (CP). It has since expanded to include more than 2,250 participants with the disorder and has resulted in more than 35 academic publications. The next phase of the project is looking to expand [...]
Canadian Cerebral Palsy (CP) Registry
Nicolas Turgeon-Morin2023-05-04T07:53:38-08:00Challenge There has historically been a lack of population-based information on how cerebral palsy presents in children, including possible risk factors, antecedent causes, functional severity, and co-morbidities of the condition. To better understand the condition, the Canadian Cerebral Palsy Registry was created in Cycle I. Project Summary The Registry is a confidential, nation-wide collection of [...]
The Canadian Cerebral Palsy Registry
Nicolas Turgeon-Morin2023-10-19T10:47:26-08:00Challenge While cerebral palsy is the most common physical impairment in pediatrics, there is a lack of data on how the disease presents in children at the population level. Do regional differences exist across the frequency and spectrum of cerebral palsy within Canada? How does the Canadian experience compare internationally ? What can a population [...]
Gaining a Better Understanding of Perinatal Stroke
Nicolas Turgeon-Morin2023-10-19T10:53:06-08:00Challenge The time around birth (known as the perinatal period) poses a high risk of stroke for children. One of the leading forms of cerebral palsy (CP) called hemiplegic CP, is often a result of these perinatal strokes. Despite this, perinatal stroke has been largely understudied, and limited treatment options or prevention strategies exist. Project [...]
Knowledge Translation Cerebral Palsy Network
Nicolas Turgeon-Morin2023-10-19T10:54:53-08:00Challenge While Canadian scientists are leaders in Cerebral Palsy research, effective communication and geography are barriers to creating connections that could lead to meaningful scientific discoveries. Additionally, knowledge of the root causes of CP is at an early stage. The lack of uptake of new evidence-based medical treatments highlights the need for better knowledge dissemination [...]
Cerebral Palsy Genetics
Nicolas Turgeon-Morin2023-10-19T10:58:04-08:00Challenge While the past several years have seen a growing awareness of the role of genetic risk factors in cerebral palsy, studies regarding the role gene variants play, their severity, and resulting co-morbidities of cerebral palsy have only just begun. Many new techniques in molecular genetics have emerged over the past few years, allowing for [...]