Challenge Children with neurodevelopmental disorders (NDDs) often struggle with sleeping, which can impair their day-to-day functioning while placing a heavy burden on caregivers. Project Summary Better Days, Better Nights for Children with NDDs (BNBD-NDD) is a behavioural eHealth intervention. The intervention focuses on increasing and encouraging healthy sleep behaviours as a way to help children [...]
Using Technology to Improve the Lives of Children with Brain-Based Disabilities
Nicolas Turgeon-Morin2023-02-22T10:53:00-08:00Challenge Children with neurodevelopmental disabilities and their families have specific needs that are often left unmet by services. This fact necessitates a means of collecting and providing the skills, knowledge and expertise to address their concerns. Project Summary The TotTech team functions as an engineering hub to provide biomedical, mechanical and computer engineering expertise that [...]
Canadian Cerebral Palsy (CP) Registry
Nicolas Turgeon-Morin2023-05-04T07:53:38-08:00Challenge There has historically been a lack of population-based information on how cerebral palsy presents in children, including possible risk factors, antecedent causes, functional severity, and co-morbidities of the condition. To better understand the condition, the Canadian Cerebral Palsy Registry was created in Cycle I. Project Summary The Registry is a confidential, nation-wide collection of [...]
The Better Nights, Better Days Project Helping Children with Neurodevelopmental Disorders Sleep Better
Nicolas Turgeon-Morin2023-05-04T08:15:57-08:00Challenge Up to 90% of children with neurodevelopmental disorders (NDDs) experience sleep problems, particularly insomnia, which refers to difficulty falling asleep, staying asleep, and waking up in the morning. This number is in stark contrast to the 25% of typically developing children who have trouble sleeping. Poor sleep can lead to significant consequences for children’s [...]
The ASD Demonstration Project: Sleep: A Comorbidity Across Disorders
Nicolas Turgeon-Morin2023-10-19T10:52:26-08:00Challenge Upward of 90 percent of children with neurodevelopmental disabilities (NDDs) have sleep issues, compared to just a quarter of typically developing children. The toll on their well-being—and their families’ quality of life—can be severe. Project Summary In 2013, ASD investigators affiliated with KBHN teamed up to guide the national research agenda on this issue, [...]