Samantha Bellefeuille, Family Partner, SIBYAC
Samantha Bellefeuille is an older sister to her brother who is 18 years old and has CDKL5. She is the Director and Founder of a day program for adults with disabilities called Fostering Forever Friendships, in Ottawa, Ontario, Canada. Linda and Samantha met when they were completing the Family Engagement in Research Certificate Program at McMaster University. When Linda asked if Samantha would be a part of the Sibling Youth Advisory Council (SibYAC), Samantha immediately said yes. Samantha believes that many siblings need a platform to be able to be a part of all aspects of their siblings’ life especially when transitioning from paediatrics to adult care. Samantha looks forward to seeing where the research projects with the SibYAC goes!
