New study titled “The impact of the COVID-19 pandemic on Canadian families of children with disabilities” examines the differences in experiences between families of children with and without disabilities during the COVID-19 pandemic as reported by parents or guardians of children aged 0 to 14 years. Results for this study were drawn from Statistics [...]
Neuro Nexus is a University of Calgary endorsed organization that organizes a Health Hack Competition every Fall. This year, Neuro Nexus will be a virtual hackathon program designed to spark collaboration across disciplines and tackle complex challenges in brain science and mental health. We connect experts in frontline, clinical, and academic practice with motivated, [...]
An Online Behavioural Treatment for Pediatric Sleep Issues in Children with Neurodevelopmental Disorders Up to 90% of Canadian children with neurodevelopmental disorders (NDD) experience insomnia symptoms including trouble falling asleep, staying asleep, and/or waking too early. Insomnia can have a significant impact on children’s daytime functioning. Poor sleep can lead to increased challenges with learning, [...]
The three of us met online while taking the Family Engagement in Research Certificate course. We each took the course for various personal reasons because of our own families and experience with research. Genevieve joined the course because she wanted to reduce the isolation that parents of children with a complex disorder often experience. [...]
The challenges associated with neurodevelopmental disabilities can be complex, and families often access a wide range of specialized clinical, educational, and community-based interventions to help their children. But the reality is money is limited and competition to fund these interventions and services can be stiff. Being able to prove the efficiency and effectiveness of interventions [...]
Dr. Macoun has been a KBHN researcher since 2015. We reached out to ask her some questions about her work to support children with neurodevelopmental disabilities and their families. Can you describe your educational path and what inspired you to get into the work you do now? My path to academia is a somewhat unusual one. [...]
When a child logs into Dino Island, their first step is to design an alias before jumping into a world filled with mythical creatures and erupting volcanoes. Their job is to complete a series of tasks and collect coins along the way. While this might sound like the premise of any great video game, Dino [...]
Nicole Morris was a first-time parent, but she knew something wasn’t right. Her one-year-old twin daughters were missing a lot of milestones. The oldest in particular was struggling—she still couldn’t roll over or hold her head up. Born at 26 weeks gestation, most people chalked it up to the girls being premature, but Morris [...]
Emily Diamond and her son, Bennett | Photo Credit: Allen McInnis, Montreal Gazette For more than a decade the Canadian Cerebral Palsy Registry has played an innovative and transformative role in Cerebral Palsy (CP) research by collecting extensive data on the disability and connecting researchers across the country. The registry is now in [...]
FER 2018 parent graduate Kirsti Mardell with her family. Kirsti Mardell never thought she would have a role to play in health research. But her whole perspective changed when her son was diagnosed with autism in 2012. Her journey began as a participant in an early detection and sibling research study. Mardell subsequently [...]
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