Genevieve Currie, RN, MN, Ph.D.
Parent Advocate & Associate Professor, College of Nursing, Mount Royal University
Dr. Genevieve Currie is a family partner researcher, and nurse researcher focused on families’ experiences in caring for children with neurodevelopmental disorders (NDDs), as well as family engagement in health care and research. Genevieve’s interest in engaging with families in research stemmed from her own family experience of having two children with NDDs, and dissatisfaction with the lack of parent involvement and perspectives.
Genevieve is committed to mentoring and fostering a community in family engagement in research. She completed the Family Engagement in Research (FER) certificate program through KBHN, CanChild and McMaster University. Based on her contributions and insights with holding the family partner perspective, she was asked to cofacilitate the course. More recently she has taken on more leadership in coordinating the new cohort of FER participants, sponsored by the University of Calgary.
Genevieve demonstrates commitment and contributions to family engagement in NDD research. She has been involved in numerous research grants, panels, presentations and research studies as a co-partner and co-leader. Genevieve’s research contributions embody family engagement in research—spanning the full spectrum of the research process from conception to dissemination.
She has been contributing to a care coordination research project supported by KBHN over the past three years, and on a COVID-19 study which KBHN used to share research findings and policy recommendations to government. With each of these contributions, she brings the family partner perspective and the commitment to engage with families in a meaningful way. Genevieve’s contributions routinely ground the research in real-world conditions, making it more applied, practical, and relevant.
Genevieve also provides leadership to KBHN on family engagement as a family research partner on the Research Management Committee. In this role, she reviews research proposal submissions and provides feedback to the Committee from a family perspective. Providing the family and lived-experience perspectives on this Committee is critical in ensuring that research funded by KBHN incorporates these lenses.
Genevieve’s passion in family engagement inspired her to pursue a Ph.D., focusing on Prader-Willi syndrome and the parent experience in meeting unusual and stringent care practices. She will continue to contribute to research and engage and integrate the family perspective.
