Family Engagement in Research (FER) Knowledge Translation (KT) Tools
As part of the requirements for the Family Engagement in Research (FER) course and leadership academy, researchers and family members partner together to create a knowledge translation (KT) tool.
The purpose of these KT tools developed by students is to disseminate knowledge and information on patient and family engagement in childhood neurodevelopmental disabilities research. Examples of KT tools include infographics, webinars, podcasts, or any other means of sharing information.
We encourage you to download and use these KT tools to support your engagement in research.
Resources & Downloads: Knowledge Translation (KT) Tools
Websites
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The Dance Ability Movement
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Websites
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Family Engagement in CP Research
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Tools & Guidelines
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A Youth’s Guide to Becoming a Patient Partner in Research
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Tools & Guidelines
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Visual Dissemination Guide for Researchers and Family/Patient Partners
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Tools & Guidelines
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The Decision Guide For Partnership Research
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Tools & Guidelines
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How to Find Family Partners for Research
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Tools & Guidelines
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Engagement & Self-Reflexion Tools
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Tools & Guidelines
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Family Engagement in Research: A Conversation Guide
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Tools & Guidelines
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Guidelines for Researchers
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Tools & Guidelines
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FER Glossary
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Social Media
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FER in Action
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Social Media
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Youth Engagement in Research Instagram Account
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Blog Articles
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Bringing More Diverse Family Voices to the Table in Health Research: Barriers & Possible Solutions
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Blog Articles
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The Importance of Family Engagement in Research
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Comics
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From Care to Research: Let’s Partner!
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Infographics
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How to Develop Relevant and Meaningful Research Priorities
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Infographics
https://kidsbrainhealth.ca/wp-content/uploads/2022/04/Getting_the_Whole_Family_Involved_in_Research_500px-280px.jpg
Getting the Whole Family Involved in Research!
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Infographics
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You Matter – Partner in Research
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Infographics
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Establishing Institutional FER Programs
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Infographics
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Interactive KT Road Map
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Infographics
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Building Blocks of Partnerships
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Infographics
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Balancing Power Dynamics in Family Engaged Research
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Infographics
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15 Ways to Disseminate Research
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Infographics
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Incorporating Patient Partners in Your Event
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Infographics
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Patient and Family Engagement in Clinical Trials
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Infographics
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What is Power Imbalance in Research?
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Infographics
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Starting the Conversation: Compensation in Family Partnership
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Infographics
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Acceptance and Commitment Training
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Infographics
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Right to Participate – Children in Research
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Infographics
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Trauma-Informed Practice in Family-Engaged Research
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Infographics
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Our Experience as Parent Partners in Research
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Infographics
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Family Research Partnerships: Guiding Principles for Success
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Infographics
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Without You, Research is Out of Balance!
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Infographics
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FER Decision Tree
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Infographics
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Language in Family Engaged Research
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Infographics
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FER Initial Meeting Guide
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Infographics
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Demystifying Academic Culture: A Guide to Research Processes
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Infographics
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Roles of Experience Experts
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Infographics
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Know Your Rights
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Infographics
https://kidsbrainhealth.ca/wp-content/uploads/2021/01/RoadmapTool_500px-280px.jpg
A Road Map for Family Partners to Get Started and Partner in Research
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Infographics
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Research and You
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Infographics
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Your VOICE Matters
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Infographics
https://kidsbrainhealth.ca/wp-content/uploads/2021/01/Conversation_guide_500px-280px.jpg
Building Successful Partnerships: A Conversation Guide for Researchers and Patient/Family Partners
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Infographics
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Patient & Family Engagement in Research: A Tip Sheet for Graduate Students
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Infographics
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How Can Parents Be Involved in Child Health Research?
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Infographics
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Strategies To Engage Families in Research
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Infographics
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Solution-Focused Tips for Communicating in Research Partnership
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Infographics
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Family Engagement in Child Health Research Needed
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Infographics
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A quick Reference Guide: Authentic Partnership in Research
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Infographics
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Engaging Patient/Family/Caregivers/Community (PFCCs) as Partners in Research
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Infographics
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Checklist for Patient Partners in Research
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Podcasts
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Barriers to Participation in Research in Historically Underrepresented Groups
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Videos
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Research Engagement Facilitator: Bridging the gap between researchers and people with lived experience
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Videos
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Encouraging Individuals to Consider Participating in Family Engagement in Research
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Videos
https://kidsbrainhealth.ca/wp-content/uploads/2022/02/Involvement_Matrix_500px-280px.jpg
Involvement Matrix
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Videos
https://kidsbrainhealth.ca/wp-content/uploads/2022/01/A_Conversation_about_Family_Engagement_in_Research.jpg
A Conversation about Family Engagement in Research
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Videos
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Indigenous Family Engagement in Fetal Alcohol Spectrum Disorder Research
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Videos
https://kidsbrainhealth.ca/wp-content/uploads/2022/01/Lets_Talk_Research.jpg
Let’s Talk Research
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Videos
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Revised Role Play Defining Roles in Research
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Videos
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Exploration on the True Meaning of Family Engagement in Research
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Videos
https://kidsbrainhealth.ca/wp-content/uploads/2022/01/Day_in_the_Life_of_Parent_Researcher.jpg
Day in the Life of Parent Researcher: An Interview
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Videos
https://kidsbrainhealth.ca/wp-content/uploads/2022/01/Introduction_to_Family_Engagement_in_Research.jpg
Introduction to Family Engagement in Research
Learn more about this projectNEWS ARTICLES
Donna Thompson shared her experience as a parent parent in disability health research in a KBHN article titled, “Using Your Lived Experience to Influence Health Research” (January 9th, 2020).
KBHN published an article on the course and the importance of family engagement in research titled, “A parent graduate of the course Training Families and Researchers to Build Better Research Together” (April 18th, 2019)
Rachel Martens shared her perspectives and experiences representing Kids Brain HealthNetwork and CHILD-BRIGHT at the United Nations in New York in an article titled, “Sharing a Perspective Only a Mother Can Bring to the UN CRPD” (August 16th, 2018)
Caitlin Young, KBHN Communications Assistant, and Bethany Becker, Communications Manager wrote an article on Parent Participation in Research titled, “Adding Experience to Expertise – How Parents can Impact the Relevance of Research” (July 26th, 2018)
Contact Us
We invite you to join the Family Engagement in Research (FER) community. To learn more about the FER Course, please visit the CanChild website, or contact fer@mcmaster.ca.
If you have any questions about the Kids Brain Health Network National Training Program, or if you want to learn more, we’d love to hear from you. Please contact training@kidsbrainhealth.ca.W2xvZ29zaG93Y2FzZSBhbmltYXRpb249InB1bHNlIiBzaG93X3RpdGxlPSJmYWxzZSIgbGlua190YXJnZXQ9ImJsYW5rIiBzbGlkZXNfY29sdW1uPSI1IiBhcnJvd3M9ImZhbHNlIiBhdXRvcGxheT0iZmFsc2UiIGxpbWl0PSItMSIgb3JkZXJieT0ibWVudV9vcmRlciIgb3JkZXI9ImFzYyIgY2F0X2lkPSIxMzk1Il0=