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Our team developed a webinar that aims to enhance Indigenous family engagement in Fetal Alcohol Spectrum Disorder research. This webinar consists of background on FASD, barriers faced by Indigenous families, and recommendations to researchers on how to promote a collaborative partnership with Indigenous families and communities. Authors: Geneveave Barbo, Fiona Caldwell-King, and Helene Estrada [...]

Wonder what Family Engagement Research is all about? This video features our stories, as researchers and caregivers, of how and why we became involved in research. This I Was There Too conversation is a discussion about why it is important for families to have a seat at the research table and includes resources to [...]

This podcast explores the issue of engaging populations that are statistically less likely to be engaged in research. Specifically, we focus on fathers, Indigenous Canadians, newcomers to Canada, and lower-income earners. We discuss barriers to participation in these groups and strategies researchers have used to facilitate higher representation from these populations in their research. Authors: Fakhri [...]

"Roles of Experience Experts" are infographic tools adapted from the Involvement Matrix developed by Karen van Meeteren and team. The Involvement Matrix is a researcher-facing tool intended to support researchers partnering with experience experts (EE). These complementary infographics are targeted towards the EE to read on their own time. These tools provide quick, clear definitions [...]

This Infographic has been designed to bring transparency to academic processes and pressures for potential research partners. The intent of the infographic is to illustrate these processes and pressures to support the inclusivity of patient and family partners in research. Authors: Mackenzie Salt, Shannon Pascoe, and Rita Abdel-Baki Please click the following links to download the [...]

The Family Engagement in Research Initial Meeting Guide provides questions to support both researchers and experience experts (families) as they begin to collaborate, co-develop relationships with each other and clarify roles before, during, and after meeting. The guide provides an overview for the first meeting by helping facilitate conversations as researchers and experience experts embark [...]

This tool is a guide for researchers when communicating with family partners. We include six guiding principles to facilitate communication and enhance the relationship between researchers and family partners. Authors: Chantel Ritter, Shannon Reaume, Karen Haas Please click the following links to download the documents:​ Language in Family Engaged Research

This tool is specifically tailored to parents and can be used in waiting rooms (or other areas) in rehabilitation centers or hospitals. The goal of the decision tree is to activate and/or encourage parents to sign up as a partner in research. We hope that this active approach is more effective than a more passive form [...]

Engaging families as partners throughout the research process is still in the beginning stages in Brazil. This infographic was created to highlight the importance of families choosing to engage in research and at the same time encouraging researchers to connect with and engage families. The tool was created to be culturally sensitive to the Portuguese [...]

This high-level overview of guiding principles for family engagement in research (FER) was developed through conversations with a diverse group of researchers, parents, and other contributors to discuss successful research partnerships. From those conversations emerged overarching themes of Equity, Flexibility, Shared Expectations, Ethics, Empathy, and Communication, all arising from a foundation of mutual Respect. The [...]