Challenge There are few interventions targeted at children three years of age and under who have early signs of autism or a confirmed diagnosis, despite evidence that early intervention is important. Project Summary Social ABC’s is an intervention co-developed by Dr. Jessica Brian (Holland Bloorview, Toronto), together with Dr. Susan Bryson from Halifax. The intervention [...]
Working Towards a Better System for People Living with Neurodevelopmental Disabilities
Nicolas Turgeon-Morin2023-10-19T10:31:35-08:00Challenge While every neurodevelopmental disability (NDD) has its unique challenges, there are consistencies among them, one of which is the difficulties parents face navigating the system. Project Summary The Integrated Navigational Support Program is working to make it easier for families to access supports and services. The project currently has three sites—Vancouver, Edmonton, and [...]
Evaluating Learning and Attention-Related Comorbidities in ASD
Nicolas Turgeon-Morin2023-05-04T06:33:07-08:00Challenge Children on the autism spectrum commonly face learning and attention challenges, but the relationships between these deficits and ASD’s core impairments are poorly understood. If we knew more about the predictors of learning and attention disorders in people with ASD, we would gain a better idea of why they arise and how to help [...]
Genomic and Epigenetic Factors That Influence Development and Outcomes in ASD
Nicolas Turgeon-Morin2023-05-04T06:34:00-08:00Challenge Parents of children with Autism Spectrum Disorder (ASD) have long noticed that ASD aggregates within families, but may manifest differently amongst siblings. Researchers wondered how and why this occurred. Project Summary The team set out to examine gene-behaviour relationships of newly diagnosed children with ASD. The team hypothesized that multifactorial causes of ASD are [...]
Social ABCs Community Translation and Dissemination
Nicolas Turgeon-Morin2023-05-04T06:35:15-08:00Challenge Once one can confirm the diagnosis of Autism Spectrum Disorder, most Canadian provinces and territories offer government-funded interventions. However, because of long wait lists—first for diagnosis and then for treatment—intervening during the early years of life is virtually impossible for many families. Project Summary Network researchers aimed to change this reality when they developed [...]
Canadian Network for Personalized Interventions in Intellectual Disability
Nicolas Turgeon-Morin2023-05-04T06:59:13-08:00Challenge Intellectual disability (ID) affects 800,000 Canadians and is defined by challenges in cognitive functions and daily living activities. Individuals with ID frequently struggle with other issues such as anxiety, autism, epilepsy, sleep problems, and difficulty living independently. But managing an ID diagnosis presents many challenges: individuals must discover which resources are best for them, [...]
Extending the Reach of Social ABCs Early Intervention: Community Expansion and Translation
Nicolas Turgeon-Morin2023-05-04T07:00:46-08:00Challenge Social ABCs is an intervention for toddlers who are showing social-communication delays or early signs of autism spectrum disorder (ASD). This intervention does not require waiting for a formal diagnosis. As a result, it allows a child to make progress during the critical stage when their brain is at its most “plastic” (capable of [...]
Child and Family Perspectives: The ASD Voices Study
Nicolas Turgeon-Morin2023-05-04T07:29:32-08:00Challenge There is a lot of academic writing on the challenges faced by children and youth with Autism Spectrum Disorder (ASD), however, much of what’s known is based on parent report or researchers’ observations. We know very little about the lived experiences of youth with ASD, from their own perspectives. ‘Giving voice’ (including to those [...]
Integrated Navigational Support for Families of Children with Neurodevelopmental Disabilities
Nicolas Turgeon-Morin2023-05-04T08:21:04-08:00A Pilot in Alberta, British Columbia and the Yukon Challenge Children with neurodevelopmental disabilities (NDDs) often navigate a confusing patchwork of uncoordinated services. These services span several different sectors, organizations and layers of government. Research shows that families frequently struggle to determine what supports are available, appropriate and accessible —especially at crucial life junctures such [...]
ASD Pathways
Nicolas Turgeon-Morin2023-10-19T10:43:40-08:00Challenge While there has been little research done about the transition to adulthood in people with autism spectrum disorder (ASD), there has also been increasing concern from parents and policymakers about the poor adult outcomes associated with ASD. However, research on children with ASD can now lead to a study of adults. Project Summary In [...]